About Felix Koch
Felix Koch is 6 months old. He wakes up every morning with a big smile. He is a happy, affectionate baby who loves music, especially Raffi. At just 12 weeks old Felix was diagnosed with a rare condition called biliary atresia, which is a blockage of the ducts in his liver, after his parents became concerned about persistent jaundice. Days after his diagnosis he had surgery to bypass the blockage. The surgery only has a 30% success rate, and if not successful his life would depend on receiving a new liver.
Over the next two months little Felix was in and out of the hospital six times, even riding out hurricane Sandy there, while his parents read him books, danced and sang, and put on finger puppet shows to keep him entertained. Just after Christmas he was placed on the United Network for Organ Sharing list.
On January 13th, six months to the day after his birth, Felix received his new liver. He looks like a new little man, the jaundice that has plagued him throughout his life is gone and his bright eyes are clear. His recovery is exceeding his doctor’s expectations. Through all of this Felix has remained bubbly and sweet, playing with his parents, building poignant relationships with hospital staff, and enduring both his illness and his treatment with grace and determination.
Although Felix’s parents have health insurance, they estimate that their portion of the costs of his medical care will exceed $100,000. They are working with the Children’s Organ Transplant Association (COTA) to help defray those costs. COTA works with families to raise money for children like Felix, so that their new lives are not overwhelmed by crushing debt, brought on by massive medical expenses.